untangling this thing we call life…

Not so long ago, Asperger’s syndrome was  pretty unheard of by the general public.  Not long before that, it was fairly unknown among the medical community.  Although Hans Asperger did his work around one hundred years ago, it went forgotten until the 1980s.

Now, in the last ten years or so, it has become one of the most used and abused terms to describe a vast swathe of people, rightly and wrongly.

Asperger’s syndrome is a developmental condition on the autistic spectrum.

It affects both boys and girls (as seen in my family).

Asperger’s syndrome is not contagious, nor is it curable.  People with Asperger’s syndrome appear to have a brain which is “wired” differently to the average – not better, not worse, but different.

Asperger’s syndrome is not a synonym for genius.

Every single individual with Asperger’s syndrome is unique – much the same as every human.  Though they may have some things in common, the most striking thing is how different each person is.  Which means that the strategies which work to help one child will not necessarily help another.

Life with someone who has Asperger’s syndrome can be both deeply satisfying and deeply frustrating.  A source of intense joy, and intense pain.

I am deeply in love with Darling Man, who has undiagnosed Asperger’s syndrome.  Together, we have three children.  Eldest and Sweet Girl both have Asperger’s syndrome.  Little Man Tom and I have the task of navigating the world with these three wonderful precious beings who are joined by some intangible “syndrome” and yet present with three sets of utterly different challenges.  I wouldn’t change them for the world, but sometimes I do wish they could understand more intuitively how I feel!!


2 Comment(s)

  1. cafecasey

    September 27, 2012 at 12:49 am

    I teach, and I have a ton of kids on the Autism spectrum, as well as my husband’s nephews. I really enjoy working with them, because they think differently–this is also a gift. Have you seen this: http://www.youtube.com/watch?v=BzFCU7hN2yk

    This kid’s a legend here…this school is about five minutes from where I went to university, so it spread around quickly. He has just qualified for the Boston Marathon. He’s incredible!!!

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