untangling this thing we call life…

Not so long ago, Asperger’s syndrome was  pretty unheard of by the general public.  Not long before that, it was fairly unknown among the medical community.  Although Hans Asperger did his work around one hundred years ago, it went forgotten until the 1980s.

Now, in the last ten years or so, it has become one of the most used and abused terms to describe a vast swathe of people, rightly and wrongly.

Asperger’s syndrome is a developmental condition on the autistic spectrum.

It affects both boys and girls (as seen in my family).

Asperger’s syndrome is not contagious, nor is it curable.  People with Asperger’s syndrome appear to have a brain which is “wired” differently to the average – not better, not worse, but different.

Asperger’s syndrome is not a synonym for genius.

Every single individual with Asperger’s syndrome is unique – much the same as every human.  Though they may have some things in common, the most striking thing is how different each person is.  Which means that the strategies which work to help one child will not necessarily help another.

Life with someone who has Asperger’s syndrome can be both deeply satisfying and deeply frustrating.  A source of intense joy, and intense pain.

I am deeply in love with Darling Man, who has undiagnosed Asperger’s syndrome.  Together, we have three children.  Eldest and Sweet Girl both have Asperger’s syndrome.  Little Man Tom and I have the task of navigating the world with these three wonderful precious beings who are joined by some intangible “syndrome” and yet present with three sets of utterly different challenges.  I wouldn’t change them for the world, but sometimes I do wish they could understand more intuitively how I feel!!

Advertisements

2 Comment(s)

  1. cafecasey

    September 27, 2012 at 12:49 am

    I teach, and I have a ton of kids on the Autism spectrum, as well as my husband’s nephews. I really enjoy working with them, because they think differently–this is also a gift. Have you seen this: http://www.youtube.com/watch?v=BzFCU7hN2yk

    This kid’s a legend here…this school is about five minutes from where I went to university, so it spread around quickly. He has just qualified for the Boston Marathon. He’s incredible!!!



Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s


Learn To Love Food

Food Fun For Feeding Therapy and Picky Eaters

Stories with Sam

Stories about our son Sam, his disability, our family and our lives. Sam is 7, loves stories and has cerebral palsy. I am learning to be his ally.

Yvonne Newbold

Doing whatever it takes to make life easier for special needs families and the staff who work with them

Charlie Turtles Shares

Live What You Love With Ease And Fun

Eli Glasman

Site of author Eli Glasman

The Adventures of Fanny P.

...because life is just one big adventure...

Fusteratedreader's Blog

Reading one word at a time

Cross Stitch Bobobitch Mononitch

Translation: One Bohemian Bourgeois Gal with an Urge to Cross Stitch

Ramblings of a KJ

Grant me the serenity to accept the things I can not change; the courage to change the things I can and the wisdom to know the difference.

Cheaper by the Dozen and Get One Free

untangling this thing we call life...

Gluten Free Gobsmacked

...sharing everyday recipes from my gluten free kitchen with a side of life.

Chewy Pickle

Artsy fartsy and completely gluten free!

Durga's Toolbox

embracing special needs parenthood with courage, compassion and joy

Handmade Christmas Project

Spreading holiday cheer one craft at a time

Gold Can Stay

"The golden moments in the stream of life rush past us, and we see nothing but sand; the angels come to visit us, and we only know them when they are gone"--George Eliot

Thoughts

thoughts at teatime...

%d bloggers like this: