untangling this thing we call life…

I’m a mum to three lovely, loving, headstrong children who each have a rather heavier burden of life to bear than most.  They have led me to learn more than I dreamed possible about the little known world of special needs.  Two of them have Asperger’s syndrome, confirming that each child with a syndrome is as unique as any two children could be.  The third has Noonan’s syndrome – a hugely complex syndrome encompassing physical, medical and learning difficulties.  From the outside my life looks terribly tangled and complicated.  On the inside, it’s all quite simple really – if not easy!


7 Comment(s)

  1. cafecasey

    October 21, 2012 at 12:43 pm

    Today, I received “The Lovely Blog Award,” and I have the opportunity to pass it on. I love this blog and am grateful to have had the chance both to read it and to have connected with you personally. Here are the rules if you choose to accept: http://bit.ly/SbGmgY Thank you so much for sharing with me and inspiring me! You are truly one of the most inspirational bloggers I have met through my writing, and I’m humbled and honored. I wish you lived next door!

    • Benedicte

      October 21, 2012 at 1:04 pm

      OH my… do you know, I already have tears flowing over the rims,because I got the notification of your latest post. As I was looking through your nominations, really interested to discover new writers through your eyes, there’s me!!!
      I’m overwhelmed and touched and… well speechless (though clearly not wordless, cos that would then not be me – chatterbox extraordinaire!).
      Thank you so, so much. I will of course accept, and put my thinking cap on today and tonight to pass this lovely award on. Do you know where it originated?
      Thank you again!!! (Oh I wish I lived next door too!!!… the thing with this wonderful life we lead that includes the internet is that some of … no, my closest friends live on opposite sides of the world!

      • cafecasey

        October 21, 2012 at 1:57 pm

        True. You can find me elsewhere on line…we’ll have to continue our conversations. Hope your children are doing very well as well.

        I don’t know the origin of this award. I shall find out, being a researcher first and foremost. Will get back to you on this:)

      • Benedicte

        October 21, 2012 at 4:54 pm

        oh another reason to “follow” you… I am not as much of researcher as I feel I ought to be sometimes. I’ll give anything a go, and it’s more of a heart on my sleeve approach!

      • cafecasey

        October 22, 2012 at 9:25 am

        no research necessary.

  2. cricketmuse

    November 18, 2012 at 3:06 pm

    I have worked with Aspberger children and my heart goes out to your challenges, yet there are triumphs too. Thanks for stopping by.

    • Benedicte Symcox

      November 19, 2012 at 8:15 pm

      Thanks to you as well! They are lovely, and awful!! But to be honest, I would struggle with “neurotypical” kids… wouldn’t know what to do with them LOL!!

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